Humble
Beginnings
In 1997, a group of Professional Volunteers under the
leadership of Youssouf Noormamode, C.S.K, Founder of EDYCS Epilepsy Group
rallied together to form a voice for epilepsy in the Republic of Mauritius. Since 1997, we have
been serving the country as a registered health charity incorporated under the
statutes of the Registrar of Associations as a non-profit and non-governmental
organization. We aim to advocate the Rights of Persons with epilepsy, raise
public awareness, improve education through publications, conferences and
outreach initiatives.
Where
are we now?
Today, EDYCS Epilepsy
Group has 4 full time established operating Centers in Mauritius and Rodrigues
islands. Over the years, the structure and management have evolved into an
organization much greater than the founding group of members could have
imagined. Through it all however, our mission remains unchanged:
EDYCS Epilepsy Group
exists to promote independence and optimal quality of life for those living
with seizure disorders by promoting information, awareness, support services,
advocacy, education and research.
What is epilepsy?
Epilepsy is estimated
around more than 20,000 people in the Republic of Mauritius. It is the most
common serious brain disorder affecting people of all ages, religions,
communities and social backgrounds. Epilepsy is a tendency to have recurrent
seizures called ‘fits’ or ‘seizures’ which originate from the brain. These
result from disturbances in the brain’s normal electrical activity. Congenital
abnormalities, prenatal and perinatal factors, severe head trauma or injury,
infections of the brain, cerebrovascular disease, brain malformations, cerebral
tumors can lead to epilepsy. Learning disability and behavior disturbance are
also commonly found in many people with chronic epilepsy.
Our Vision
EDYCS Epilepsy Group’s vision is to create an epilepsy free
community.
Our Mission
EDYCS Epilepsy Group is dedicated to promoting
independence and optimal quality of life for children and adults living with
seizure disorders through the development of appropriate strategies, programs
and services addressing their needs and fulfilling their Rights.
Our Values
Our members are patients and family focused. We work collaboratively with our Professional & Government partners. We work cross sectors to bring epilepsy out of the shadows in the Republic of Mauritius, its outer islands and Africa.
Our Key Objectives
Our Core Areas of Work
A glimpse at our Operating Centers (Mauritius & Rodrigues islands)
The Center located at Boulevard Rivaltz Port Louis was inaugurated on 27 November 2007 by His Excellency, Sir A. Jugnauth, GCSK, KCMG, PC, QC, the President of the Republic of Mauritius. It is fully equipped and staffed to provide free support services to registered People with Epilepsy in terms of:
EDYCS Help to Grow
Educational & Rehabilitation Center
EDYCS Help to Grow Educational & Rehabilitation
Center is a registered SEN School to the Ministry of Education established on
24th February 2010 with the prime objective to provide inclusive
education to children and young adolescents with epilepsy and learning
disorders. The Center is staffed with a Manager, 3 SEN Educators, a Carer and a
Handyman. The school is supported by both the Ministry of Education Grant and
CSR funding.
EDYCS Rodrigues
Epilepsy Health Service Center
The Center located at Quarters la Ferme was inaugurated on by Mr. Ladd Emilien, Rodrigues Regional Assembly Commission for Health and the Chairperson of the NGO Trust Fund. It is managed by a full time Service Coordinator employed under the National Social Inclusion Foundation Programme Grant to provide free support services to registered People with Epilepsy in Rodrigues in terms of:
EDYCS Rodrigues Help
to Grow Educational & Rehabilitation Center
EDYCS Rodrigues Help to Grow Educational &
Rehabilitation Center is a registered SEN School to the Rodrigues Regional
Assembly Commission of Education established on
with the prime objective to provide inclusive education to children and
young adolescents with epilepsy and learning disorders. The Center is staffed
with a Manager, 3 SEN Educators, a Carer and a Handyman. The school is
supported by the RRA Commission for Education Grant.
Our Registration
Our Affiliation (Mauritius)
Our Recognition (Mauritius)
Our Regional & International Affiliations
Bank Information
Awards
Our Strategic Goals
The following strategic goals represent longer-term directions that represent explicit major choices about the scope of EDYCS Epilepsy Group’s efforts and the outcomes we want to achieve, taking advantage of internal strengths and external opportunities. The achievement of these Strategic Goals will represent significant improvements within the organization and help fulfill EDYCS Epilepsy Group vision and mission. Our core areas of intervention will be:
PURPOSE OF STRATEGIC GOALS
EDYCS
Epilepsy Group sees continued opportunity in its strategic positioning as the
leading multidisciplinary epilepsy professional organization. At the same time,
the role of EDYCS Epilepsy Group is evolving with changes in health care,
social programmes, pressures from the decline in our sources of funding, and
changing expectations around professional development and education. In order
to be well-positioned for these changes, EDYCS Epilepsy Group is proposing
achievable plan to guide its work for the next two years.
PROMOTION EPILEPSY EMPLOYMENT RIGHTS
STRATEGY
1: Collaborate with the National Social
Inclusion Foundation
STRATEGY
2: Strengthen and develop new partnership
with National and Regional Stakeholders to the promotion of the Rights of
Persons with Epilepsy and Employment.
IMPLEMENTATION & PROMOTION WHO RESOLUTION ON THE
GLOBAL BURDEN OF EPILEPSY
STRATEGY
1: Collaborate with the AFRICA REGIONAL
EXECUTIVE COMMITTEE IBE
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